WP-6 on Indicators on cancer rehabilitation

WP-6 is led by Piret Veerus (National Institute for Health Development, Estonia).

The needs of cancer survivors are an emerging aspect of cancer control. The list of indicators produced by EUROCHIP-1 did not include indicators for cancer rehabilitation. However, it is expected that the need for rehabilitation services for cancer patients will increase as mortality for several cancers tends to decline. WP-6 will therefore be concerned with defining a list of indicators on cancer rehabilitation in collaboration with patient associations.

The discussion is based on these notes:

  • Included indicators must be at population level
  • Included indicators do not necessarily have to be already available
  • Included indicators can be can be a proxy
  • Included indicators can be subdivided in high and low priority
  • It is important to discuss of common sources across Europe and on the efforts necessary for collection
  • At the end of the project the list must be concise (5-6)

Final list includes:

Burden of cancer rehabilitation needs

  • cancer prevalence (total and by time since diagnosis)
  • cured and qualified prevalence

Indicators measuring the success of rehabilitation

  • rate of return to work for cancer patients
  • quality of life of cancer patients (in comparison with general population) using EORTC questionnaire or other international questionnaires
  • presence of rehabilitation needs and their satisfaction:
    o speech & language therapy for head and neck cancer patients
    o physiotherapy for breast cancer patients
    o dietician therapy for colorectal cancer patients
    o psychological support for all cancer patients

Final material

WP-6 indicator description
WP-6 final report

Meetings

Domain
Date
Place
Material
Report
WP-6 discussion on scientific articles
19-12-11
Lisbon (P)
-
WP-6 cancer rehabilitation indicator discussion
09-09-11
Bruxelles (B)
WP-6 cancer rehabilitation indicator discussion
16-06-11
Madrid (E)
WP-6 cancer rehabilitation indicator discussion
22-06-10
Warsaw (PL)
WP-6 activity discussion
11-11-09
Cernobbio (ITA)
-

WP-1 and WP-3: read the final report

WP-2: see media training material and the EUROCHIP-3 list of publications

WP-2 and WP-4: see media guide on cervical cancer in Estonia, Latvia, Lithuania, Bulgaria, Romania

WP-4: see results of the studies in Estonia, Latvia, Lithuania, Bulgaria, Romania

WP-5: report of the survey on cancer registry indicators and on promotion of CR in Greece and Luxembourg

WP-6: report and summary of cancer rehabilitation indicators

WP-7: report prepared on breast cancer and childhood acute lymphoblastic leukaemia


 
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